Special Hearts Association

Help us give a chance at life to a soul with heart problems. Learn Maria's story and how you can contribute.

Our Story

Special Hearts Association is a non-governmental organization founded by us, Maria's parents, out of profound love for our daughter, hope, and the desperate need to give her a real chance at life.

Maria is only 2 years old and suffers from a severe heart malformation, associated with ZTTK, an extremely rare genetic syndrome, which makes the option of a heart transplant impossible in the future.

So far, Maria has undergone four open-heart surgeries: the first three in Italy, and the most recent at Boston Children's Hospital in the USA. The surgeries in Italy were palliative; they saved her life temporarily, but did not solve the cause. The treatment begun in Boston is the only real long-term solution, with the potential to restore her childhood.

The support of the people and companies who believed in Maria's chance has been essential in sustaining the family's efforts to pay for her treatment in Boston, in the United States.

The first surgery was already carried out successfully in September 2025, with the second intervention - the biventricular correction - to follow at the end of summer 2026.

Maria continues to need support for this essential stage and for the recovery that will follow.

We founded this association to support Maria's fight in a legal, transparent and organized way.

All funds are directed exclusively towards the treatments, investigations and medical therapies she urgently needs.

We are fighting for our daughter's life. We invite you to be part of this effort.

Together we can make possible what seems impossible.

Maria – Our Story

"[...] We received important news from Boston Children's Hospital (USA), where we sent the necessary documents for a medical opinion regarding the possibility of a biventricular correction. This intervention could prevent a heart transplant in the future.

The doctors from Boston gave us hope: Maria could be eligible for this correction, through a procedure to stimulate the growth of the left ventricle. So far, Maria has undergone four open-heart surgeries: the first three in a clinic in Italy, and the most recent at Boston Children's Hospital, in the United States. [...]"

Learn more about Maria's fight and how you can contribute to her chance at a normal life.

📖 Read the full story

How can you help?

ASOCIATIA INIMI SPECIALETax ID: 51427430

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